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The Science Behind SDS
Learn all about SDS, Research, and Drug Development

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To learn about the medical and clinical side of SDS, visit our "What is SDS" page.

SDS Science Spotlight Series:
10-minute videos on key concepts in SDS and research

Ask-an-Expert

Ask an Expert - Community Chat
Online Monthy Webinar Series

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Posted recordings

SDS & Science Snapshot
The blog to keep you in the loop about the latest developments

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From around the web:
Science & Medicine for Kids and Adults
Insightful resources about the basics, relevant to SDS and research

Also check out our Kids' Corner for additional resources for children!

Genes and Inheritance
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Genetic Testing (Applications and Techniques)
Cell and Gene Therapy and CRISPR

The American Society of Gene & Cell Therapy has some fantastic resources to help patients understand what cell and gene therapy is. Check out their recourses (videos, graphics, etc) on the Gene Therapy 101 page.

The Immune System
Cell Biology and Ribosomes
Blood, MDS, and Blood Cancer / Leukemia
Bone Marrow / Haematopoetic Stem Cell Transplant
Neutropenia (Impact)
Neutrophils (Science)
Pancreas and Digestion
Therapy Development process
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Shwachman-Diamond Syndrome Alliance Inc.

Social:

Email: connect@SDSAlliance.org

Phone: +1-617-329-1838

Mail: PO Box 2441, Woburn, MA 01888

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The Shwachman-Diamond Syndrome Alliance (SDS Alliance) is a 501(c)(3) nonprofit organization dedicated to building a world where Shwachman-Diamond Syndrome (SDS) is a manageable condition and all patients and their families can thrive - through driving research and engaging in advocacy and education.

 

The SDS Alliance brings together patient families, researchers, clinicians, and other diverse stakeholders to better understand, diagnose, and treat this devastating cancer predisposition genetic disorder. The SDS Alliance was launched in 2020 by the parents of a child with SDS, who are biomedical researchers and entrepreneurs.

 

The SDS Alliance’s leadership and scientific & medical advisors are experienced clinicians and researchers focused on combining the patient-family perspective with solutions based on the best available scientific evidence.

 

Families from around the world are fundamental to accelerating the SDS Alliance’s mission to improve outcomes for all SDS patients, especially populations from diverse backgrounds who don’t have possible stem-cell donor matches. The SDS Alliance intentionally elevates the voices of individuals from diverse backgrounds, the LGBTQ+ community, people with disabilities, and marginalized groups, as they bring critical insight and advance the SDS Alliance’s mission.

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