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SDS Events - Global
- sáb., 20 de mai.Virtual event20 de mai., 10:00 – 15:00 GMT-4Virtual eventThe first global, virtual, meeting of its kind to provide patients, caregivers, scientist, physicians, and all other stakeholders access to the latest information on all things Shwachman-Diamond Syndrome.
- ter., 18 de abr.Robinson College, Cambridge, UK18 de abr., 09:00 GMT-4 – 21 de abr., 13:00 GMT-4Robinson College, Cambridge, UK, Grange Rd, Cambridge CB3 9AN, UKThis Congress is held every other year in different locations throughout Europe and North America. It is the only scientific congress dedicated to Shwachman-Diamond Syndrome. Due to the global Covid-19 pandemic, the event was postponed several times. Now scheduled for April 18-21, 2023!
- sex., 24 de mar.Paris24 de mar., 09:00 – 16:00 GMT+1Paris, Paris, FranceNous vous invitons aux 4e journées des neutropénies qui se tiendront les vendredi 24 et samedi 25 mars prochain.
- sáb., 30 de abr.Virtual30 de abr. de 2022, 12:00 – 18:00 GMT-4VirtualThe National Marrow Failure & Myelodysplasia program at SickKids Canada is pleased to invite you to this interactive meeting. It is an ideal opportunity to learn, network with other families and meet experts in the field.
- sáb., 24 de out.Virtual run/walk, location of your choice24 de out. de 2020, 07:00 GMT-4 – 01 de nov. de 2020, 23:00 GMT-5Virtual run/walk, location of your choiceIt's finally here: the first ever virtual global fun run/walk event to support Shwachman-Diamond Syndrome (SDS) research! www.SDSAlliance.org/steps
- dom., 12 de jul.Camp Sunshine, Cosco, ME, USA12 de jul. de 2020, 14:00 GMT-4 – 16 de jul. de 2020, 10:00 GMT-4Camp Sunshine, Cosco, ME, USA, Cosco, MESDSF (SDS Foundation) hosts a 6-day session at Camp Sunshine every other summer for SDS families to meet with each other and meet and learn from the top SDS experts in North America.
- sáb., 29 de fev.Painting with a Twist, North Andover, MA29 de fev. de 2020, 14:00 – 17:00 GMT-5Painting with a Twist, North Andover, MA, 10 High St, North Andover, MA 01845, USASDS Alliance partnered with Painting with a Twist in North Andover to host a painting event as a fundraiser.
- dom., 15 de set.Boston, MA15 de set. de 2019, 08:00 – 16:00 GMT-4Boston, MA, Harvard Medical School Joseph B Martin Center 77 Avenue Louis Pasteur NRB 133 Boston, MA 02155Celebrating the SDS Registry's 10th anniversary! Please join us for a complimentary day of education, connection, and fun! - Hear updates from the SDS Registry - Learn about exciting research - Discover cutting-edge clinical trials for SDS - Connect with other SDS families
setembro de 2023
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