Join the #CureSDS
Action Network

We envision a world where SDS is a manageable condition and all patients are able to live a full life to their full potential. Since SDS is a rare and complex disease, this vision relies on patients, caregivers, doctors, researchers, regulators, and other stakeholders to work together. Please join our Action Network today by filling out the questionnaire below. You will be able to share your insights, voice your needs, and draw on the experience and expertise of others. We cannot wait to welcome you to the network and community.