Every successful therapy is a result of a tried-and-true strategy: support researchers, recruit specific expertise, and coordinate research. Our mission is to replicate the success for SDS. Will you join us?
Your donation will be used exclusively for SDS research. All our operating costs are covered by a separate account, supported by grants and donors whom we approach privately.
The first global, virtual, meeting of its kind to provide patients, caregivers, scientist, physicians, and all other stakeholders access to the latest information on all things Shwachman-Diamond Syndrome.
This Congress is held every other year in different locations throughout Europe and North America. It is the only scientific congress dedicated to Shwachman-Diamond Syndrome. Due to the global Covid-19 pandemic, the event was postponed several times. Now scheduled for April 18-21, 2023!
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