top of page

28 FEBRUARY 2023


28 February 2023 will be the 16th international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organizations from countries and regions all over the world will hold awareness-raising activities. 

Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.

The campaign targets primarily the general public and also seeks to raise awareness amongst policymakers, public authorities, industry representatives, researchers, health professionals, and anyone who has a genuine interest in rare diseases.

Watch and share our 2020 Rare Disease Day video, highlighting SDS!

Click on the icons to download the rare disease day info packs.


RDR Information Pack.PNG


Screenshot 2022-02-02 131446.png
bottom of page